We took a quick trip to the infusion center today to check on Johnny's previously critical Calcium level. Good news! Perfectly Normal. Thank you, Lord! The Aredia did its job and drew the calcium back into the bones where it belongs!
While we were waiting for the results, they loaded him with a litre of fluids . . . Never hurts! He told the nurse that his only complaint was that his stomach was hurting a little bit. So, while the fluids went in, they gave him anti-nausea meds through the port as well.
The tummy troubles continue to plague him. There is such a fragile balance between his fluid levels and constipation as they both relate to amounts and types of medicine he is taking. Before you know it, it has been four or five days since he has had a good poop. Arrghh! So, we are walking a tight rope with his fluid levels (although labs today showed he wasn't dehydrated) and still have to deal with the poopin' issue. He has stayed very quiet all day as we've been working on getting things moving along in the GI tract.
Johnny will have a CT of his chest, abdomen, and pelvis on Thursday. This will determine if there has been any advancement of the disease, if things have stabilized, or if he has been the recipient of the miracle for which I have prayed for months. Even if the scans look bad, I don't plan on stopping my Miracle Prayer any time soon. Have you ever met anyone more Miracle Worthy? Me, either.
In other Brawley news: Jake is sporting a mouth full of metal! He got his braces today and has quite the sore mouth tonight. He was not happy that I made his appointment for 8 a.m. I don't think he has seen 8 a.m. since school let out. However, since he was so tired he actually SLEPT through getting his braces on. The orthodontist said that was a first! He came home and slept most of the day away and is now raring to go. He'll be up all night, no doubt.
Many thanks to all of those who contiune to pray for and provide for my family. There is so much good in this world.
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Miracle worthy....another understatement!
ReplyDeleteWe are praying the miracle prayer here too (and you know WE know it works!)
love you all much....
Georgeann, Derek, Chad & Ryne
I know its hard but stick in their Brawly family. We are praying also for all of you.
ReplyDeleteMarilyn & Bill Gaideski
WE love you guys!! It was so great seeing you on Friday!! We wish we lived closer so we could be of help! Just know that you are in our thoughts and always our prayers each and every day!!! Take care of each other! Love you,
ReplyDeleteHeidi