Sorry, I won't be able to post much right now.
News from the CT is bad. Liver is worsening, despite both regimens of chemo. Cancer has traveled outside the liver to the mediastinal lymph nodes (lower chest) and in the upper abdomen.
Dr. Ansari is giving Johnny his regular chemo regimen today, and adding Avastin. He will evaluate our options and give us an updated plan in two weeks. We may be looking at experimental options next. Radiation isn't an option. Additional surgery isn't an option.
Heaven help us. Please.
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Pam did you check out any of my links on FB? Are you familiar with the high dose Vitamin C Infusions? Since Johnny has a port he could do these right at home. Or I found a place in Goshen who will do them, Crossroads Healing Arts. You can also go to youtube and see all the videos about the infusions. People have been doing them for over 15 years and having great results, becoming cancer free! I am trying to get Tom started as well. Call me if you want to know more. Tara
ReplyDeletesending our love and prayers............
ReplyDeleteMy heart is with you all!!!!!!!!
ReplyDeleteOur hearts are breaking for you and your family. Prayers are constantly coming your way and we all hope for the best. Johnny, you and your entire family have been true inspirations to us - draw on our strength and love - take what you need, that is what we are for. There is so much love and support in this community for you!
ReplyDeleteGosh I dont know what to say!! We will be praying even more for your family, please let us know if there IS ANYTHING else we can do. The Schiele's
ReplyDeleteWe are sending love and prayers to you, Pam. Johnny keep fighting, sending you strength and hope. the Jungenbergs
ReplyDeleteI am praying, sending love, strength and positive thoughts! Pam Reed
ReplyDeleteI am just so sorry, i wish there was a way I could ease the pain for you! XOXO May
ReplyDeleteWe hate to hear this news. Praying for you guys!
ReplyDeleteLove
The Meek Family
Much love and prayers from the Montgomery's.
ReplyDeleteWe love you- I'll write you more later, right now, all of my words sound like anger.
ReplyDeleteStupid, stupid, freakin' cancer (that's the nice version).
We love you and are praying for a solution.
Georgeann, Derek, Chad and Ryne Nolan
praying so hard...loving and missing you all
ReplyDeleteJeff, Bernice, Maria, Johnna & Ronnie
Sending you and Johnny love and prayers.
ReplyDeleteIf you can, go to the Simon Cancer Center at IUPUI. It's a state-of-the-art facility and there are experimental therapies and treatments there.
There is hope... (*hugs*)
Praying for you all -
ReplyDeletePam, Johnny & boys....keep fighting this and keep the faith! You are surrounded by love and prayers! Carey, Lori, Ally, Caiden, Adison & Kendall Baxter
ReplyDeleteYou are all in my thoughts . . .
ReplyDeleteTeri
Pam, Johnny and Boys you are always in our thoughts and prayers! Keep your faith....
ReplyDeleteLove always The Gills Tex, Connie, Clint and Trever
We are praying for you!!
ReplyDeleteTracy (Mather) Fortune and family
I am confident that this situation is OK with Johnny. It is very sad as I hate the prognosis. But this is Johnny's journey and we can help make it the best possible journey and man could expect. We've done so thus far...
ReplyDeleteKeeping a good thought
I am praying for you guys and hoping that this new treatment works for Johnny.
ReplyDeleteJohnny,Pam,and boys, you are in my daily prayers and thoughts. I was down to the Grotto here at ND today and lit a candle for all of you. Stay strong and feel the love and care from all of your family, friends and God. We all love you with all our hearts.
ReplyDeleteLove, Zita Szilagyi
Sending daily thoughts and prayers your way. Much love and support to you.
ReplyDeleteI'm am so so sorry-I will say some prayers for you all-since now my mom is up there, I know she'll do all she can to help Johnny!
ReplyDeleteMuch love,
Lynne Laubach
Johnny, Pam, and boys~
ReplyDeleteWe are so sorry to hear the latest news. Our hearts are aching for all of you. We are still sending constant thoughts and prayers your way.
Love,
The Rudlaffs